Hey KCNQ2 Community
Every KCNQ2 Warrior has a story worth sharing.
Sign your KCNQ2 Warrior up for a birthday shoutout, or share your family's journey with a community that understands. Choose a form below to get started.
KCNQ2 Cutie Birthday Shoutout
We love celebrating our KCNQ2 Warriors, especially on their big day. We'll post a shoutout on our social channels for your child's birthday.
Please sign up 2–4 weeks before the birthday.
Tell us what to celebrate
Share any accomplishments or big moments from the past year. We'd love to include them.
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Share your loved one's story
Parents, caregivers, those who have lost a loved one, and healthcare professionals are all welcome. Your words help others understand the impact of KCNQ2. Read community stories.
Not sure where to start?
- A moment of kindness that moved you on this journey.
- The one thing you want others to know about KCNQ2.
- How life has changed since the diagnosis, including the good.
- Something that makes life with KCNQ2 harder than people realize.
- How you plan to stay engaged with the community.
One family's journey
A Place for Us!
KCNQ2 Cure Alliance Vice President Sara James Butcher shares her family's KCNQ2 encephalopathy journey.