2016 Annual KCNQ2 Cure Summit
Upcoming EventsRegistration is now open for KCNQ2 Cure's 2016 Family & Professional Summit, October 7-9 at the Sheraton Hotel, Silver Springs, Maryland Powered by Eventbrite This 3-day event is designed to unite all groups committed to improving the lives of those with KCNQ2 Epilepsy - including families, caregivers, clinicians, researchers and professionals in the pharmaceutical industry.…
American Epilepsy Society
KCNQ2-Associated Epilepsy: A Review of Variable Phenotypes and Neurodevelopmental OutcomesLEARN, SHARE, CONNECT AT THE AMERICAN EPILEPSY SOCIETY ANNUAL MEETING Get a first-hand look at the latest research and the most recent innovations in epilepsy and meet the people leading these advances — more than 5,000 top epilepsy professionals from more than 60 countries will attend. The AES Annual Meeting is like no other bringing…
Rare Disease Day
Rare Disease Day® was first observed in Europe in 2008. It was established by EURORDIS, the European Rare Disease Organization. In 2009, EURORDIS asked NORD to be its partner in this initiative and to sponsor Rare Disease Day in the United States. NORD is thrilled to celebrate the 7th US Rare Disease Day this year!…
KCNQ2 Awareness Week
BlogsKCNQ2 Cure United Kingdom Family Meet Up
The KCNQ2 Cure Alliance is excited to announce our UK family meet up. In addition to European and American families, Dr. Sarah Weckhuysen will be joining us from Belgium to give a presentation. For those who are not familiar with Dr. Weckhuysen, she was instrumental in the discovery of KCNQ2 Encephalopathy. The event is open…
Autism Awareness Month
Most people recognize April 1st as a significant day on the calendar because of April Fools’ Day, but within the realm of autism, the first day of April marks something a little bit different. Namely, it’s the first day of National Autism Awareness Month, first given this designation in April of 1970 by the Autism…
2017 Cocktails for a CURE
Come join KCNQ2 Cure Alliance for our 1st Annual Cocktails for a CURE fundraiser in Colorado on May 6, 2017 6pm - 10pm A perfect date night or Girls/Guys Night Out! Come join the fun and support those with a catastrophic form epilepsy ! Invite your friends, family, and neighbors to this awesome “adults only”…
Politics and Other Drugs
Join Emmy award-winning journalist Sara James for your political fix, 7pm Thursday 20th July at the Macedon Wine Room in Melbourne, Australia. Trampled by the Trump Train? Broken by Brexit? Left wondering about One Nation? You’ve just survived the Year of Voting Dangerously. The most shocking series of elections since WWII shook the world order…
2017 New Horizons in Science
In our second annual scientific dinner, world-leading researchers King and Olson explore the latest scientific frontier—and explain how venom from tarantulas, scorpions, sea anemones and pit vipers could help save lives.
2017 KCNQ2 Cure Family & Professional Summit
Doubletree by Hilton Silver Springs Silver Springs, MD, United StatesREGISTER HERE